A GROUNDED THEORY STUDY ON PATIENT PERCEPTION OF RADIOTHERAPY SERVICES IN MEDAN HOSPITAL

Abstrak

Radiotherapy remains a crucial pillar in the management of various cancers; however, its effectiveness is not solely contingent upon advancements in medical technology but also on a comprehensive patient experience. The theoretical significance of deeply understanding patient perceptions lies in its capacity to inform the development of patient-centered healthcare models, extending beyond clinical efficacy to encompass psychosocial and emotional dimensions. Practically, positive patient perceptions of radiotherapy services directly correlate with treatment adherence, patient satisfaction, and ultimately, better health outcomes, while also mitigating the significant psychological burden associated with illness and treatment. Recent data from the World Health Organization (WHO) indicate a global increase in cancer prevalence, with estimated new cases rising annually, underscoring the urgency to continuously enhance the quality of radiotherapy services received by patients. This trend is exacerbated by systemic healthcare challenges, including resource limitations and variations in service quality across facilities, which can widen disparities in patient experiences. A specific research gap exists in the dearth of in-depth qualitative studies that richly and contextually explore patient perceptions of radiotherapy services in urban Indonesia, particularly in Medan, which possesses unique demographic and healthcare system characteristics. Much of the existing literature tends to quantitatively measure satisfaction or focus on technical aspects of treatment, leaving a considerable void in understanding patients' narrative experiences across the entire spectrum of their journey, from diagnosis acceptance to interactions with medical staff and the emotional and social impact of radiation therapy. Therefore, this study aims to deeply explore and develop a fundamental theory regarding patient perceptions of radiotherapy service quality in selected hospitals in Medan, Indonesia, focusing on identifying key dimensions that shape their experiences and how these dimensions interact. Grounded in the theoretical frameworks of Patient-Centered Care and Service Quality theory, this research endeavors to build a rich theoretical understanding that can guide improvements in service quality. The primary hypothesis underlying this study is that patient perceptions of radiotherapy services constitute a multidimensional construct influenced by factors such as the professional competence of staff, effective communication, the physical environment of the facility, and emotional and psychosocial support, collectively shaping the overall experience that in turn influences treatment acceptance and success. This research employs a classic Grounded Theory design, chosen for its ability to generate theory directly from empirical data, making it highly suitable for exploring phenomena with limited prior understanding or theoretical grounding. The study sample comprises 30 adult patients who are currently undergoing or have completed radiotherapy at public and private hospitals in Medan, selected through purposive sampling followed by theoretical sampling. The primary instrument utilized is semi-structured in-depth interviews, supplemented by participant observation in radiotherapy areas to capture environmental context and interactions. Data validity and reliability are maintained through data triangulation, member checking, and rich description. Data analysis is conducted iteratively using the constant comparative method, involving open coding, axial coding, and selective coding to identify patterns, themes, and relationships between concepts until theoretical saturation is achieved. Data analysis reveals that patient perceptions of radiotherapy services are a dynamic construct shaped by the complex interplay of initial expectations, actual experiences, and personal interpretations. Five core categories emerged from the data: (1) Readiness and Understanding of Therapy, emphasizing the importance of clear information regarding treatment goals, procedures, potential side effects, and duration. (2) Quality of Interaction with Professional Staff, highlighting appreciation for technical competence and empathetic communication. (3) Efficiency and Comfort of the Service Process, encompassing schedule management, minimal waiting times, and a comfortable physical environment. (4) Experience of Side Effects and Their Management, where communication and management of side effects by the medical team significantly shape perceptions. (5) Psychosocial and Emotional Support, recognized as a crucial element for patients' mental resilience. A significant unexpected finding is the emergence of the category "Self-Adaptation and Acceptance," demonstrating how patients actively develop coping strategies and self-acceptance in response to their radiotherapy experience. The primary pattern identified is that positive perceptions of radiotherapy services are not a result of one or two factors, but rather a synergy of all interconnected dimensions of the patient experience. The conclusion of this study is that patient perceptions of radiotherapy services are a complex phenomenon shaped by dynamic interactions between technical, interpersonal, administrative, and psychosocial aspects. The fundamental theory developed, termed the "Patient-Centered Radiotherapy Experience Model," underscores that a positive experience is contingent not only on clinical treatment success but also on the quality of interactions, adequate information, effective side effect management, and comprehensive emotional support. The theoretical contribution of this research is the development of a rich and specific conceptual framework for understanding the radiotherapy experience from the patient's perspective within the Indonesian context, which can serve as a foundation for further research. Practically, these findings provide direct implications for hospitals in Medan and similar regions to design and implement service quality improvement programs focusing on the holistic needs of patients, including staff training in empathetic communication, development of easily understandable information materials, streamlining service workflows, and providing more structured psychosocial support. Recommendations for future research include quantitative validation of the developed model, exploration of healthcare professionals' perspectives, and comparative studies across different types of healthcare facilities.